It seems like this past week something just 'clicked' with Jackson. I can't quite put my finger on it, but something has definately changed. He is so motivated now, and WANTS to do his therapies, and play, and be active. He even started bearing weight on his legs! (he's still not too sure what they are for, but it's a start!) Today we were in Target just getting out of the house since it decided to stop raining. Jackson was actually looking at everything, grabbing at things, and smiling at people who passed by. He has always been a social butterfly, but he just seems to be coming out of his shell even more theese days! In the past Jackson seems to do something just to show us, and then not do it anymore... Like sitting, waving bye bye, putting his arms up when he wants held... but now he seems to be doing these things more and more often. He has even discovered that he has legs, and is bearing weight on them when we hold him up ....good boy! :) These are the little things that continue to give us hope that someday he will be a 'normal' kid.
Jackson met with his ENT this past week and he does need surgery to remove his Tonsils and Adenoids before we can move forward with getting his trach out. We had to wait 3 months to see this ENT and have known that this needed to happen since January! To our surprise they were able to schedule surgery for Next Tuesday (May 10th). It's more common than not with trach kids to have this procedure done. It is most likely going to be an Outpatient Surgery unless he has any issues that would make them want to keep him over night. They will also do another Bronch (scope of his airway) during the surgery to see if there is any narrowing or tissues that need to be removed before his trach comes out. 4-6 weeks after the surgery they will schedule another Sleep Study without his trach, and if he passes he will come home trach free! (keeping fingers crossed)
Jackson also has eye surgery this month on May 23rd. This is a less of a surgery and more of a 'procedure' as there will be no actual cutting involved, but still will go under General Anestesia. Hopefully after this no more surgeries! I am a little aprehensive about all of this. Jackson has had surgery before, but it's always scary and heart wrenching to watch your child go through. He has had 2 surgeries in his little life, and has done very well with all of them, so we are praying theese will be just as good.
I also can not get over how happy Jackson is. He is such a good baby...and always has been. He has taken everything with stride and rarely complains. I wish I had half the resilance he has! I have continued to see answered prayers, and miracles happen within this precious little boy. I thank God every single time I see a smile, a frown, a tear, a poopy diaper, and for every single breath that Jackson takes... It's so hard to believe that he is 18 months old. I have watched him grow and develop in ways that not a lot of mothers get to experience, and although it is a hard road It makes every single day just that more special. He is alive, he is happy, he is healthy... Thank You God!
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