Tracheostomy.
We read all of the pamphlets, books, and instruction manuals on how to "care" for a trach... It didn't sound too challenging. What they don't prepare you for is the mental toll it takes on you caring for a "sick child."
Jackson on his way to surgery.
The procedure itself went very well. We were told it could take around 3 hours to perform the tracheostomy, g-tube placement, and ingunal hernia repair. Just an hour and half later Jackson was back in his room recovering.
Jackson, a few minutes after surgery
As much as I would like to forget that day and all of the emotions, tears, and anxiety that came along with it, Jackson would not be here today if it were not for this procedure. God was watching over him. His prognosis when we left the hospital was poor... he was sent home to be "comfortable"... He sure showed them! Today 1 year later his prognosis is Excellent.
I would love to type more and elaborate on the entire day, but it's making my head hurt just thinking about everything that went on. Some days it feels like yesterday... and other times it feels like an eternity. God Speed.
I love the blog and your first posts! You all have an AMAZING story, and I pray that by you sharing it in this way, you will continue to touch the hearts and lives of so many (as little Jack-man has already been doing). :) Keep it up!! -Heather Apel
ReplyDeleteThank You Heather! You and your family give me so much inspiration. Jillian has overcome so much in her short life, she is truly amazing! Your story has touched my heart, and gives me strength to keep pushing forward. Thank YOU again Heather.
ReplyDeleteEmily