Jackson has been trach free for over a month now and I can't believe how much our lives have changed. We are not strapped down to the house, or worrying about how much battery power we have left anymore... life just seems simpler. Yes it's still chaotic, but it's a 'different' kid of chaos. We can now focus all of our time and energy on his therapies, and most important eating food by mouth. Jack gets 100% of his 'food' through a G-tube, which has been a lifeline for him, and has given him the ability to gain weight while he had his trach. Jackson sticks EVERYTHING in his mouth...except FOOD! It baffles everyone, especially his feeding therapist. He has such an adversion to food in his mouth that he will actually gag when you put food on the tip of his tounge. On the plus side, we know it's behavioral versus an actual anatomy problem, so with lots of coaching and reinforcement we can and WILL get him eating... just on his own time. Our next therapy Goal is to get Jackson sitting on his own by January (his adjusted 2nd birthday). In just 4 sessions with his new Physical Therapist, Jackson has made some awesome progress. We know that he will achieve the goal, again just on his own time. He is getting stronger every day, and is making awesome progress in his therapies.
Be strong in the Lord and never give up hope, your going to do great things...I already know! -Sidewalk Prophets
